All children are blessings, but when you’re a parent of a preemie, you really appreciate life and your kids because of the incredible journey to have them. Many parents are proud of their children’s milestones. I remember just being proud that Little One survived. I was proud that she struggled so hard to live.
Here she is, five years later. She is a happy, funny, healthy, clever kid.
The road getting her to where she is now wasn’t the easiest at times. She came out of everything with very minor issues. She just has asthma and a very mild heart murmur, which she will likely outgrow as she gets older. She suffers from bronchial and pulmonary issues in the Winter, and whatever nasty bugs that go around, she happens to catch. We are just so thankful that she is healthy and happy.
For Parents of Preemies
There’s one thing I have to say and it is that having the support of the medical staff and fellow NICU parents at Mount Sinai really helped me get through those long days, weeks and months in the NICU. I honestly do not know how I would have survived without my fellow NICU parents.
Some have said, “Oh, preemie awareness…that’s your schtick, right?”
I wasn’t sure if I should have been offended by comments like that, but if offering comfort and support to others who have or are going through the emotional roller coaster of life in the NICU helps them, then I am happy to have this as a cause that is close to my heart. People who haven’t experienced the feeling of fear — of losing your baby, of your baby not surviving another day, or needing blood transfusions, spinal taps or surgery to keep them alive, have no idea of how emotionally challenging this is. If you’re a parent with a baby currently in the NICU, your new “normal” is spending days and nights in the NICU beside your baby’s isolette, learning what all the alarms and numbers on the monitors signify, learning what Bradycardia, Tachypnea, Bilirubin levels (and other terminology you probably would never even need to learn about) mean. You learn the proper questions to ask the medical team when they’re on ’rounds’ and learn to become your baby’s advocate.
Today is Parents of Preemies Day and I would like to take the time to give a shout out to all my fellow preemie parents out there.
Join the convo on Twitter with @premieparentday and share your preemie story. #ParentsOfPreemiesDay